What should be done if a child has infantile spasms

Patient's question:

Patient Age: 1 year
Description of Symptoms: My child has infantile spasms. They were discovered when he fell off the sofa at five months old. During episodes, he cries very intensely, and it takes two to three hours to calm down. Fortunately, he arches his back and curls his head. When we had his electroencephalogram checked at the hospital, it showed significant disturbances. At seven months old, he was hospitalized at Nanjing Children's Hospital for treatment, which lasted for about half a month. He was treated with ACTH and oral Tegretol. When he was discharged, his condition was very good—no more spasms or crying. After discharge, he was only taking oral Tegretol and no other medications. Now the child is one year old, and I recently noticed that his eyes turn inward and he flips his whites of the eyes abruptly. This has happened repeatedly several times. Sometimes his cheeks turn bright red. This is again

Doctor's answer:

(1) Bowing spasms: They are characterized by sudden, brief, generalized muscle spasms, with bending of the neck, trunk, and legs inward or outward, and both arms rapidly extending forward and outward in an embrace-like manner.
(2) Nodding spasms: They involve recurrent nodding motions.
(3) Lightning-like spasms: They last for an extremely short duration and are often difficult to notice unless attention is paid. Infantile spasms have five characteristic manifestations:
(1) Individual spasms are short, lasting 2 to 10 seconds each.
(2) The body, particularly the head and upper torso, flexes forward.
(3) Spasms occur frequently, multiple times a day, and can occur in clusters, sometimes even dozens of times in a single episode.
(4) Spasms typically occur just as the infant falls asleep or wakes up, when consciousness is still hazy, and may be accompanied by loss of consciousness, sweating, facial cyanosis, and fatigue and drowsiness.
(5) EEG findings during spasms vary, while interictal periods often show characteristic hypsarrhythmia. This condition usually ceases within 18 months of age, and after spasms stop, some may evolve into other types of spasms. Over 90% of affected children experience delayed intellectual and motor development. Treatment with hormones is often most effective.

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