After taking medication for tuberous sclerosis, there was swelling in the body, abdominal distension, and an enlarged spleen.

Patient's question:

My daughter is now over four years old. She was diagnosed with tuberous sclerosis at six months of age and has been taking antiepileptic drugs, Tegretol and Clonazepam, ever since. Last June, due to the long-term uncontrolled epilepsy, the doctor recommended that we undergo epilepsy craniotomy surgery. After that, we switched to the antiepileptic drug Oxcarbazepine Trileptal. Since the New Year's Day this year, she started experiencing swelling, abdominal distension, and an enlarged spleen, along with severe thrombocytopenia. We treated her at the children's hospital for more than ten days, and the swelling subsided, but the spleen remained enlarged, and the platelet count did not increase. Could you please suggest any effective treatment methods? Thank you.

Doctor's answer:

Disease Analysis: Tuberous sclerosis is a genetic disease that easily leads to epilepsy, kidney disease, and other conditions in the human body. It can cause swelling in the body, an increased risk of splenomegaly, and hypersplenism, leading to a decrease in platelet count. This condition is relatively difficult to treat.
Advice: If necessary, you can visit a hospital for treatment, such as a splenectomy, which may gradually improve the low platelet count. Additionally, traditional Chinese medicine (TCM) treatments can be used to boost platelet levels, which may gradually lead to improvement.

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